National Association for Down Syndrome – Since its inception in 1961 NADS has always believed that parents helping parents is a very powerful concept and most parents find that some of their greatest resources are other parents. NADS is funded by private and corporate donations, fundraising events and by membership dues.
National Down Syndrome Society – The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They envision a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
DS Action – is a San Diego, California based non-profit that raises money for special projects such as the Rady Children’s Hospital Down Syndrome (Multidisciplinary) Clinic. DS Action holds monthly meetings in San Diego to identify the unmet needs of people with Down syndrome and to find creative solutions to meeting those needs. To meet this need, DS Action worked to establish a Down Syndrome Center, where all children with Down syndrome would have an equal opportunity of receiving recommended evaluations, referrals and intervention services.
Down Syndrome Association of San Diego – Established in 1978 by families with a need for a support and resource network with comprehensive information on Down syndrome. The Family Support Program is invaluable in assisting parents with unique education, healthcare and social issues. They envision all people with Down syndrome will be afforded the same life opportunities, to be valued and respected as contributing members of society.
Down Syndrome Education International – provides educational research and support for young people with Down syndrome. This UK-based organization’s activities include scientific research, education, and on-line and print information. The web site contains an enormous amount for information both on the website as well as in the form of books and DVDs that you can order. Downsed.org is useful not only for parents of children with Down Syndrome, but also for teachers and therapists.